June 9, 2017

Two Springs and Second Opinions

Our lovely, fragrant cherry blossoms (as seen through Prisma) before the winds blew them, and Spring, away.

Spring is my favourite season. It's a time for nature's renewal of life when buds form, flowers bloom and the rains wash away the memory of a bitter winter. It's invigorating. Having spent most of the winter in Victoria (minus one month back in Calgary in February for my brother's beautiful Banff wedding), I got to experience two Springs this year. Victoria's Spring began in February while Calgary's seem to have just come and gone. Double the cherry blossoms, double the tulips, double the enjoyment :). 

I am once again overdue in relaying the status of my health. First of all, I feel great! While snowbirding in Victoria, I got stronger, more energetic and... heavier (thanks to my indulgence of glutenous chocolate raspberry French turnovers;). However, February's scan results did not all reflect how I was feeling. The CT scan was stable (awesome!), but we were surprised and saddened by the radiologist's report on my brain MRI. He noted progression, albeit small. Thinking I would need another Gammaknife treatment, we sent the images to Dr. H (my neurosurgeon in Chicago). We were ecstatic to hear that those lesions were actually pseudo progression, caused by late radiation changes and were inconsequential. I've had two more brain MRIs since then and the same thing happens. Radiologist reports more progression, neurosurgeon reports just more radiation changes. I trust my neurosurgeon, because he actually knows me, rather than a random radiologist who I've never met, does not know my history nor bothered to see how I am feeling (no offence to radiologists). Getting the second opinions from Dr. H has saved me so much grief from being taken off an effective treatment too early, from having to undergo unnecessary and potentially harmful or ineffective treatment(s), not to mention the emotional distress that comes with a change in therapy. Can you imagine how differently this would have turned out for me if we had not asked for a Dr. H's opinion?? ... And THAT is why second opinions matter! 

Other than that fiasco, we are keeping an eye on a couple of things which may or may not have any significance. But I am still, indeed, feeling awesome and, mostly, normal so I'll just keep taking advantage of my good health, my good fortune, and the good life. Summer's heat, long days, festivals, fresh fruits, and social gatherings are just around the corner! Wishing you all a happy, safe and memorable summer! 

January 21, 2017

A New Year

Happy New Year everyone! I hope the holidays and the start of this new year has been good to you.  I have been enjoying my new found life so much that I've neglected my blogging! No apologies. S, Zoey and I are "vacationing" in Victoria, BC. We were here for much of December and returned, after a busy holiday schedule back home, in January for at least another month! While the rest of Canada was freezing, Victoria, although colder than previous years, had much more tolerable weather. Winter has been awesome!

Before I tell you what we've been up to, I should update you on my health. Throughout the ordeal in the hospitals in late summer, as I started then stopped then restarted Tagrisso, I continued to have routine brain MRIs and chest CTs. Tagrisso is working miraculously! My first scans and scans eversince (my most recent being early January) have shown massive  decreases in tumour burden in all parts. There are now only two tiny lesions in my brain and one small nodule in my lungs. My bones have all healed nicely and I feel 100% better! Tagrisso has proven to be very tolerable. I honestly think Tagrisso had very little to do with my hospital stays. Thank you AstraZeneca. Thank you everyone for all your prayers, words of encouragement, and support. I am thoroughly enjoying this renewed life with an abundance of gratitude! 

I thought I could just show you what we've been up to on Vancouver Island. A friend of mine introduced me to a new app called Prisma. It can take mediocre photos and turn them into art! Being artsy myself, thanks to a very talented high school art teacher (thanks Mr. G!), I have been busy collecting "art pieces" to share with you (most of which are from our weekend trip to beautiful Tofino/Ucluelet)! On top of that, we discovered Russell Books in Victoria and I have steadily been devouring novels. There are also great walking trails, parks, restaurants and villages to explore here. Today, we stumbled upon Victoria's Women's March and happily joined in on the rally! I am healthy and happy. I hope you are too:).


Along the Lighthouse Trail, off the Wild Pacific Trail, in Ucluelet.


Lighthouse Trail, Ucluelet


Zoey on Chesterman Beach at sunset, Pacific Rim National Park


Long Beach, Pacific Rim National Park


Little Qualicum Falls, lower falls


Peacocks at Beacon Hill Park, Victoria